May 1, 2008: CT Attorney General's Investigation Reveals Flawed Lyme Disease Guideline Process, IDSA Agrees To Reassess Guidelines, Install Independent Arbiter
Terms of the Legal agreement: "Whereas the Attorney General of the State of Connecticut has conducted an antitrust investigation of the IDSA (Infectuous Disease Society of America), relating to its development and promulgation of clinical practice guidelines for the treatment of Lyme disease...
A dramatic tale of microbes, medicine and money, this eye-opening film investigates the untold story of Lyme disease, an emerging epidemic larger than AIDS.
The Lyme Disease Association provides the following brochures: LymeR Primer*, ABC's of Lyme Disease*, Tickmarks (Bookmarks)
Advanced Topics in Lyme Disease - Diagnostic Hints and Treatment Guidelines for Lyme and other Tick-Borne Illnesses.
Sixteenth Edition, October, 2008
Joseph Burrascano Jr, MD
Tick Identification / Tick Removal 'business sized' Card. Printable
Published by the Lyme Disease Association.
Grant fund for pediatric testing and treatment for Lyme disease families who have no health coverage for their children. A one time grant of up to $1,000 per child will be available to be applied for through the child’s physician.
LDA created the fund in collaboration with internationally acclaimed, New York Times best-selling author Amy Tan.
Specializing in Microbiology, Virology, Molecular and Cell Biology. Clongen consists of two main divisions: Clinical Diagnostics for Infectious Diseases and Contract Research. Clongen holds state and national licenses in laboratory medicine.Providing high quality GLP testing according to FDA guidelines. ELISA, Western blotting, immunohistochemistry, protein purification, DNA/RNA purification, Assay development, DNA/GLP sequencing, real time PCR.
IGeneX, Inc. is a specialty immunology laboratory and research facility, providing personalized service to over 1,000 private practice physicians, hospitals, and other clinical reference laboratories throughout the U.S. and Canada. The laboratory also functions as a pilot site for diagnostic manufacturers in the introduction of new assays, and has extensive collaborative agreements with multiple research groups.
Lyme and Tick-Borne Diseases Prevention, Education and Research Act of 2009 ;U.S. House Bill HR 1179 / U.S. Senate Bill S 135
Please contact your State Congressmen and Representatives to educate them regarding this bill and to advocate for their endorsement. This legislation will promote the emergent need for research and development.
Upon registration with the Lyme Disease Association, you may search the database for a physician who treats Lyme disease near you.
http://www.lymediseaseassociation.org/referral/LogIn.php?setcookie=yes
ILADS (International Lyme and Assoicated Diseases Society) and TTC (Turn the Corner) Foundation sponsored Preceptorship CME Accredited Physician Training Program for Primary Care, Family Practice and Specialists. Evidence-based teaching.
Brochure and application at this link.
http://www.ilads.org/lyme_disease/Physician_Training_Program.pdf
click: treatment guidelines for protocol and comprehensive treatment guidelines.
This paper presents a rationale for therapeutic use of intravenous nutrients; reviews the relevant published clinical research, describes the author’s clinical
experiences, and discusses potential side effects and precautions.
IDSA Lyme Disease Review Hearing Presentations - July 30, 2009
http://www.ilads.org/lyme_disease/media/lyme_video_cameron.html
Healing the Brain Applied Neurobiology 2008
Save Your Teeth and Gums! Prevention of gum disease, bleeding gums, sore gums, bad breath, gingivitis, tooth decay!
Neuropsychological Considerations in Lyme and
Tick-borne Diseases – A Complex Picture
http://www.n-e-t-s.org/NYC_Lyme_Support_Presentation_062507.pdf
Candida (systemic yeast) and Borreliosis
http://www.warrenmlevinmd.net/285/text/365/files/candida.pdf
IDSA Lyme Disease Review Hearing Presentations - July 30, 2009
http://www.ilads.org/lyme_disease/media/lyme_video_stricker.html
The LDA has as one of its goals: Stop the spread of Lyme & Other Tick-borne diseases.
�Tick checks are very important as is proper tick removal (see LymeR Primer brochure). LDA does not endorse products.
Public Health Alert (PHA) is a newspaper committed to researching and investigating Lyme Disease and other chronic illnesses in the United States.
(click 'download the attachment')
...The Deutsche Borreliose-Gesellschaft (German Society of Lyme-Borreliosis) raises objections to the IDSA Lyme Guidelines published in 2006. The fundamental basis for our objections is that the implementation of the IDSA guidelines extends beyond the United States and into Europe
and clinical implications for Chronic Borreliosis. Dr. Alan B. MacDonald, MD. University of New Haven, Lyme Disease Symposium
http://www.molecularalzheimer.org/files/Biofilm_New_Haven_ppt_Read-Only_.pdf
Through his research, and with the help of other leading researchers in the field of molecular and cellular biology, Dr. MacDonald is pioneering a broader understanding about the behavior of Borrelia burgdorferi, the bacteria that causes Lyme disease.
http://www.lyme-disease-research-database.com/alan-macdonald-transcription.html
Note: CDC says Lyme disease is under reported and that only about 10% of cases that meet CDC surveillance criteria are actually reported to CDC. Click on your state on the map for Lyme case history. Remember to take that number times 10 for a closer idea of cases in your state.
The California Lyme Disease Association (CALDA) is a non-profit corporation acting as the central voice for all tick-borne disease issues in California and a supporting voice for national issues. Through research, advocacy, and education of the public and healthcare professionals, CALDA seeks to prevent tick-borne diseases, encourage early diagnosis, and improve the quality of healthcare provided to people with tick-borne diseases.
Founder: Mrs. Lauren Egler
Founder: Doug Fearn
Printable Lyme Disease Basics booklet
Contacts: Gail Sheffer or Jen Lecrone
Co-Founder: Tracie Schissel
Tracie lost her dearest friend, her sister and co-founder Lesle Wermers to Lyme disease in 2008. Their mission: To educate, guide and support others in fighting this battle against Lyme Disease. Lymefighters is an affiliate of the
"Lyme Disease United Coalition"
2008 newly revised guidelines
Dr. Joseph Burrascano, MD, ILAD
Turn the Corner is a non-profit organization dedicated to the support of research, education, awareness, and innovative treatments for Lyme disease and other Tick-Borne diseases
Bb=Burgdorferi Borrelia (Lyme Spirochete / bacteria) Video Compliments of Lyme Disease Association.
Video clip in NC showing tick gathering in the field; and story by Lyme patient Dave Tierney. Female Lone Star - white dot on back of tick.
Bb - Burgdorferi Borrelia. (Lyme spirochete-bacteria)
http://www.lymediseaseassociation.org/Borrelia100XOil4PC.wmv
ie: joined together in a pair.
Aetos Technologies has made available to the Lyme Disease Association certain videos which feature new imaging technology called CytoViva™. Each one shows Borrelia burgdorferi (Bb), the bacterium that causes Lyme disease.
http://www.lymediseaseassociation.org/Borrelia100XOilBloodPC.wmv
2008 Pure Fashion Show was honored to present special Make-A-Wish guest, Heather Holtry. Heather is battling chronic disseminated late-stage Lyme Disease. Her wish is to 'give back' for LD research. Her custom-designed gowns were shown at Pure Fashion Atlanta, in an effort to increase awareness for Lyme Disease. Her gowns were auctioned for Lyme disease research.
http://atlanta.daybooknetwork.com/story/2008/03/31/8825pure-fashion.shtml
Newspaper article: Teen's gowns to benefit Lyme Disease Association for Lyme disease Research
http://cumberlink.com/articles/2008/06/13/news/local/doc4851a66a7312d657042861.txt
Page 22 - In the Spotlight
Publisher: Elaine Lord
http://www.recognitionwithstyle.com/Archives/Issues/Issue5/VIssue5.html
“Makes-A-Wish”
for Lyme Disease Research by Dawn Irons, Editor. The "Wish" Was Hers to Have, But She Chose to Give it Away To Help Others
http://disciplelifejournal.com/Articles/dawnirons/make%20a%20wish%20for%20Lyme.htm
Story featuring Heather's testimony and Make-A-Wish give back.
http://www.publichealthalert.org/Articles/dawnirons/Heather%20Holtry.html
Chris Cetok-Reporter
Eric - Cameraman