Lyme disease forum

“Hey, I'm glad you stopped by!"

Future updates and documentary showings will be posted here on my home page. 

I hope you will be blessed by the information on my site.heather ivorysurprise benvigilphotography

My family will be adding more evidence-based science and educational materials on my "Lyme disease Education" tab as they are published. 

The 1st S.Central Lyme forum was hosted in my home town as part of my 'giving back' request when I was granted a Make-A-Wish.  It was an educational and scientific gift to my community, our surrounding areas and the few hundreds who traveled far and wide.  We had guests as far away as Minnesota, Illinois and Florida.

Doctors, specialists, veterinarians, healthcare providers, educators, local representatives and families came.  We had a wonderful professional team of experts in the field of Lyme disease epidemiology, science, prevention and education. Our guests told us that they walked away with the truth and will now be able to prevent and protect their families and patients if they find themselves facing Lyme disease. 

The first part of my wish was to auction some of my fashion designs for Lyme research.  I presented a check to the Lyme Disease Association (LDA) from private donations  and the proceeds of the charity auctions of my gown designs sold on eBay in the amount of 1,919.50.  A special thank you to:  Mr. and Mrs. Jim Curtis of Tee Time Golf Pass, Mike and Laurel Anspach of Laurel's Valley Dance Studio and The Nazerene Youth Fellowship Group for your kindness in contributing towards research for a cure.  The LDA has raised more research funds for a cure for Lyme disease than any organization or government agency. I hope you will be encouraged by the information on my site."   

Serving the Lord with all of my heart!  

~Heather 

"I am a teen with a dream for a cure".  There are several teens and young adults across the nation who are now my dear friends.  Together, with these courageous fighters, we are using our late diagnosis, life-threatening experiences with Lyme and the deadly co-infections to be a voice for the hundreds of thousands of teens, college and career young men and women who are very, very sick. Our voice is their voice. 

We are Lyme Warriors!

 "Don't let anyone look down on you because you are young,but set an example for the believer in speech, in life, in love, in faith and in purity"   ~1 Timothy 4:1

 

 Email:   SCentralPaLymeForum@yahoo.com

Thank you for visiting www.stylebyheatherrose.com

                                                                       

 A note from the family:

Every year hundreds of thousands of people across the United States, in Canada and throughout Europe will be either bitten by a Borrelia infected tick or battle this vector borne disease through gestational transmission.   The science is clear.  Yet, our medical communities at large are under-educated.  This is largely due to hindrence as a result of politics.  Thankfully, educators are being raised up across the nation, preceptor, accredited continuing medical education programs are emerging and one-by-one, our nation will learn how to protect, prevent and treat this disease.

We have had the privilege of showing this incredible film to hundreds and hundreds of people over the last 8 months; and referring several thousand more across nation to other showings in their regions. We are so grateful for this educational tool.

Our guests includes physicians, nurses, researchers, professors, medical professionals, veterinarians, educators, families battling the disease and family members trying to understand it, as well as a significant number of teens and young adults.  We have had supervisors of employees who have Lyme and pastors who have families battling within their churches, synagogues, temples and beyond. 

We find folks to be very discerning and quick studies when presented with the truth.  There are always wonderful, well thought questions brought to the discussion and references available to help guide folks to their answers.

During each showing, we meet more and more professionals and families from both local and regional communities.  Folks travel distances to come for the education.  The documentary speaks for itself; but it is the discussion period proceeding that always takes place after these showings, that is most impressive. 

People are interested in being informed, sharing their personal experiences, discussing true science and the facts surrounding the political confusion that has come with Lyme disease.  Many need comfort and assurance; some are frustrated, many in disbelief that this can happen in our culture to hard working, educated citizens.  They are looking for answers. 

We have found that folks are impressively motivated to understand the truth; for some it is eye opening, some affirming to their experience, some challenging to what they had been told.  Doctors and the medical profession are desiring to know how to care for their patients as they gain knowledge of the two standards of care and need for the gold standard test for any stage of the disease, as well as a modern approach to treatment based on good R&D.  They are caught in the middle and it is their conscience that guides how they choose to address this disease.

Most impressive are those guests who come skeptical, doubting or not believing that chronic persistent infection exists because of the rhetoric that does not necessarily include the whole truth or both sides of it.  We receive so many favorable comments from these guests who are grateful to have seen evidence of, giving them a different paradigm.

Our family's mission is not to diagnose, but to educate with facts and evidence-based science so that others are equipped to rule Borrelia and co-infections in or out appropriately; and to bridge patient to physician when called on. 

As many of our Lyme LIterate specialists have said to us, you do not need a degree to research and understand.  You just need the right motive.  Our motive has been to understand the truth and to use that to help guide us in saving our daughter's life and then sharing it with you.                                    ~Barry and Diana

 



 

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